An ALS Patient and Family Advocate is a caring professional who provides on-going disease education, support and resources to people with Amyotrophic Lateral Sclerosis or ALS (PALS), their loved ones and to the community involved in caring for PALS. The advocate fosters collaboration and coordination of services between professional disciplines working to facilitate communication between patient, family members and health care teams. This is a full-time, exempt position.
All Patient and Family Advocates report to the Director of Patient Services and are considered part of the Les Turner ALS Home and Community Team. The team currently consists of 4 registered nurses and 2 licensed clinical social workers. All are expected to represent the Les Turner ALS Foundation in a professional manner when they are working or attending Les Turner events.
The Les Turner ALS Foundation (LTF) has been Chicagoland’s leader in the fight against ALS for nearly 40 years. As a local, completely independent ALS nonprofit, the Foundation provides patient service programs to support the majority of people living with ALS in the Chicagoland area. In addition, the Foundation funds the Les Turner ALS Research and Patient Center at Northwestern Medicine, consisting of three ALS research laboratories, the Lois Insolia ALS Clinic and other research and educational activities at Northwestern under one comprehensive umbrella. Learn more at www.lesturnerals.org
Duties and Responsibilities include but are not limited to: •Provide home/ nursing home visits, phone/ email support, participate in support groups and provide ALS education •Self -schedule and manage time spent on home visits, ALS in-services and in- home office work •Document and submit schedules, time cards and home visit notes on a timely basis •Attend monthly LTF Home Team meetings •Evaluate home environment for safety, adaptations and equipment needs at home visits •Educate regarding disability, Medicare, Medicaid, private insurance and other financial options •Guide access to care through state programs, caregiver services and explore additional means to maximize assistance •Assist with advance directives; including living wills, medical power of attorney and other end of life issues •Collaborate with home health agencies, hospices and other community organizations- making appropriate referrals when indicated •Work collaboratively with the LTF office staff to jointly represent the Foundation at LTF events and community presentations •Attend and participate in LTF events as suggested by the Executive Director
Qualifications: •Registered nurse with active licensure and malpractice insurance •Neurology, respiratory, hospice or case management experience preferred •Ability to work independently as well as part of a team •Familiarity with Microsoft Office •Must have a car with valid driver’s license
Benefits: •Working with a dedicated, knowledgeable group of professionals who care deeply for people with ALS and their families •Competitive salary and benefits package, commensurate with relevant experience •Paid holidays and paid time off
The mission of the Les Turner ALS Foundation
is to raise funds to:
• Advance scientific research into the causes, treatments and prevention of ALS
• Provide people living with ALS, their families and caregivers exceptional clinical care and support services
• Increase awareness and education of ALS